Ahus-ffii Sweden

Alexion & Astra Zeneca is now in a partnership as we understand?! We hope it will help all with Ultra Rare Diseases like a-HUS, PNH and several others to be able to get treatment, for examples: Soliris, and furthermore Ultomiris. Maybe that will get those with those diagnosis to get a better life and that the prices may drop?? We can at least hope so. Merry Christmas and a Happy New Year to all of you.

Nu har Ultomiris även blivit godkänt i Sverige, nu återstår att få tillgång till detta läkemedel, som med all säkerhet skulle göra livet så mycket bättre,!! NT-Rådet sätter krokben som de brukar, då det inte är kostnadseffektivt =QALY,?!?! Vem/vilka är de som kan sätta ett pris på LIVET,?? STAY STRONG,!!!

Anyone that have been informed by their doc’s,???

Ultomiris to everyone Diagnosed with a-HUS and PNH in all of EU, and everyone in any country,!!! We are all HUMAN,! Stay Strong all of you

We that’s on Soliris today should be very grateful to get acces to Ultomiris,!!

Atypical HUS affects all aspects of life: from work & school to lifestyles including holidays & vacations. What issues arise when aHUS patients need to infuse eculizumab during travel for business or pleasure? https://www.ahusallianceaction.org/away-from-home-eculizum/